Spinal Muscular Atrophy - USA

Are you living with SMA? We’d like to hear more about your experiences.

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Involvement

Online Survey


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Commitment

60 minutes


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Reward

$130

Who can apply to participate?

People in the US living with SMA and their caregivers.

What’s involved?

We are conducting a series of online surveys with people living with SMA and people caring for loved ones with SMA to learn more about their experience. The purpose of this research is to gain an insight into your experiences living with SMA, from the early signs and stages and diagnosis, to the current day. Touching on many elements, including your opinion on the treatments you’ve been taking to manage symptoms along the way. You will be asked to participate in a 60-minute online survey, during which you will be asked a series of questions by one of our independent researchers. There are no right or wrong answers, we are simply wanting to hear your opinions and views. Please rest-assured that there will be no attempt to sell or promote anything to you during this conversation and that your details will be kept confidentially at all times.

As a thank you for your help?

You will receive $130 for your time and opinions.

What Countries / Areas?

US Canada France Germany Italy Spain Poland

This project is sponsored by a pharmaceutical company – and your views and comments, along with those of others who are also living with SMA will be fed back in an anonymised format to help their understanding of how real lives are impacted by SMA - your input will help to shape the future. By voluntarily providing your details below, you consent to Adept Field Solutions collecting and using the information for the purposes of contacting you for market research. You may opt out at any time and your personal data will not be shared with any third parties without your explicit consent. By voluntarily providing your details below, you consent to Adept Field Solutions collecting and using the information for the purposes of contacting you for market research. You may opt out at any time and your personal data will not be shared with any third parties without your explicit consent.

By voluntarily providing your details below, you consent to Adept Field Solutions collecting and using the information for the purposes of contacting you for market research. You may opt out at any time and your personal data will not be shared with any third parties without your explicit consent.

Not suitable? Click here to join our patient community to be kept informed of future studies.